Thursday, March 25

Lorenzo's Oil: Mid-90's true-story flick about the Odones and their ALD (adrenoleukodystrophy) son. ALD is a very rare sex-linked genetic disease. The story follows the parents (Gusto and Michaela) of Lorenzo as they try to fight the disease and the death sentence doctors have placed on their son. At the time, ALD patients weren't expected to last longer than 24 months after diagnosis.

Anyway, rent the movie. The DVD version will be released on April 6 of this year. Nick Nolte (who plays Lorenzo's father, Agusto) won an Oscar for his performance, I hear. It's also got Susan Sarandon in it.

While you're at it, donate to the Myelin Project, which was funded by the Odones and is working on research and medication for myelin (an enzyme having to do with the nervous system) therapy, which will not only benefit ALD patients but those with multiple sclerosis, leukodystrophies (the class of diseases that ALD belongs to), and other nervous-system disorders.


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